Outcomes

Learn more about the seven outcomes from the CRCI.

Provincial COVID-19 Registry

The CRCI Data Science Group has proposed the creation of a single registry for COVID-19, that includes data on all patients who have tested positive or who have been confirmed as a case. The registry will be managed by the PHSA/MOH and augmented via data linkage to routinely collected data (e.g. MSP, PharmaNet) and purpose-built data (e.g. ICU management details). Requests for researcher access to the registry and to any linked data will be coordinated by Population Data BC. This will make it possible to link to other data, including immigration data and data available through the BC Data Innovation Program.

Post-COVID-19 Recovery Clinics

The Post-COVID-19 Recovery Clinics at Vancouver General Hospital and St. Paul’s Hospital, providing specialized care and follow-up for people who were diagnosed with COVID-19 and are now in recovery. The clinics provide care, services and education through a novel mix of on-site and telehealth-enabled clinics that allow for multidisciplinary engagement with patients, their GP’s, an allied health team, and a network of subspecialists.

The Post-COVID-19 Recovery Clinics are a collaboration between Providence Health Care, Vancouver Coastal Health, Fraser Health Authority, and is the first of a provincial network intended to serve people across BC who are recovering from COVID-19.

Provincial COVID-19 Biobank

There are plans to establish a provincial biobank network and catalogue of COVID-19 biospecimens for research. Samples will be available for immediate use by researchers in order to pursue innovative and collaborative projects.

Goals of the BC COVID-19 Biobank include:

  1. Collection of remnant biospecimens from multiple hospital sites,
  2. Prospective collection of biospecimens from COVID+ patients (in hospital and community),
  3. A catalogue/inventory of biospecimens with processes to enable linkage to clinical information held by the provincial data sources, and
  4. Access and release of the biospecimens to researchers.

Biobank processes are still being established and are not yet accepting applications. If you are planning a research project that involves collection of samples from COVID-19 patients, please complete the request form.

Provincial COVID-19 Data Platform

The Data Science Node is working with academic and health sector leaders to develop data governance principles that can be applied to researcher-collected data. Current discussions concerning platforms are focused on using tools such as PROMIS to support clinic operations, augmented with other tools such as REDCap as needed. These systems are designed to be flexible and extensible, to support new research protocols as they are developed.

Provincial COVID-19 Research Symposia

The BC Centre for Disease Control (BCCDC) and the UBC Faculty of Medicine co-hosted a virtual COVID-19 symposium on April 9, 2020 as an opportunity for the BC research community to hear about current research, enable collaborations, and share resources across the province. The symposium drew a remarkable level of interest not only internally but also from industry, health authorities, government, and other institutions/organizations. The symposium provided an opportunity for the research community to identify gaps that still need to be addressed in response to the pandemic. In addition to gaps, researchers also identified resources that can be shared within the community.

In addition to the BCCDC/FoM virtual symposium, the CRCI Psychosocial Group organized a COVID-19 symposium at the Department of psychiatry research day.

REACH BC

REACH BC is an online platform that connects British Columbians to health research opportunities based on their health interests.  The REACH BC platform has been established for some time with the help of the BC SUPPORT Unit.  With the onset of the COVID-19 pandemic, the REACH BC platform has become even more important.

Researchers seeking to recruit COVID-19 patients are invited to submit and publish their research opportunities on the public REACH BC Directory. REACH BC together with the BC Centre for Disease Control are coordinating contact of all COVID-19 patients in the province in order to engage them in participation in research studies and other health research opportunities.

Psychosocial Work

The Psychosocial Working Group has produced many outcomes, including:

  1. Creating a web page for researchers to share mental health tools and questionnaire and publications from the group.
  2. Implementing a psychiatric screener in the multidisciplinary COVID-19 clinic to identify COVID-19 patients with potential mental health concerns.
  3. Establishing of a psychiatric clinic to provide comprehensive psychiatric assessment of covid19 screen positive patients and to gather information on psychiatric impact of COVID-19.
  4.  Obtaining Strategic Investment Funding from UBC’s Faculty of Medicine in order to establish a COVID-19 resources website and to create a virtual platform for data collection.
  5. Organizing a COVID-19 symposium at the Department of psychiatry research day.
  6. Providing consultation to a number of BC-based research teams on the inclusion of psychosocial outcomes within larger COVID-19 research.